Ed Sipler - Steps to Cope,adapting 5-step

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Adapting an Adult Model for
Children and Young People
The Opportunities and Challenges
Ed Sipler
11/11/14
We have been following the development of the
5 Step Method for a long time
• Have you ever gone to a
conference and heard a
good idea? ( We first
heard of 5 Step work in
2001 & 2002 )
• So you hear about an
intervention can you just
use it for a different
group it was designed
for?
It did shape how we responded to
NICE Guidelines
• Provide verbal and written information
and advice on the impact of drug misuse
on service users, families and carers.
• Where the needs of families and carers of
people who misuse drugs have been
identified staff should offer guided selfhelp, typically consisting of a single session
with the provision of written material.
• Provide information about, and facilitate
contact with, support groups, such as selfhelp groups specifically focused on
addressing families’ and carers’ needs.
Drug misuse: psychosocial interventions,
Guidance CG51, NICE 2008
But NICE say to do more
If they need more
– provide information and education about drug
misuse
– help to identify sources of stress related to drug
misuse
– explore and promote effective coping behaviours
– This work normally consists of at least five weekly
sessions.
What we are talking about here is the
5 – Step Method
March 2010, Another conference and hearing
about the evolution of 5 Step work
• It was that at this
conference the
relationship/
partnership with the
Taking the Lid Off
Partnership (ASCERT,
Barnardos, South
Eastern H&SCT) and the
UK Alcohol Drugs and
the Family Research
Group began.
• It was also when a
supplement in Drugs:
Education, Prevention, and
Policy was dedicated to
research on the Five Step
Method (Volume 17,
Number s1 (2010)
Why do we need an intervention for
young people in their own right?
‘I felt sad and angry. I used to cry at night in bed on my own.
Because I didn’t like what was happening......I found it hard to
sleep at night.....family life was hard and lonely'
At least 18 000 children aged 11-18 in Northern Ireland are living with parental
substance misuse
Alcohol plays a part in a third of known cases of child abuse and is a feature in a
majority of domestic violence offences
40% of children on the child protection register are there as a direct result of parental
substance misuse.
70% of our “Looked After Children” are living away from home as a direct result of
parental substance misuse.
Because of the very definition on “Hidden Harm” . The serious negative
consequence on children and young people.
Developing 5 Step work for
young people
• Research warns against the straight translation of an
adult service for young people (E.g. Crome, 2006)
• Are there exclusion criteria?
• Harwin(2010) suggested brief intervention type work
may not be enough for at risk young people
• Lorna (who you get to meet) challenged us to think
of the creative ways to meet the needs of young
people(2010)
• Parental consent versus Gillick competence
The Challenges of Developing an Intervention
for Young People From an Adult Model
• Styles of coping are different for
young people compared to adults
• Materials have to be suitable for
young people
• Engaging young people in a
structured intervention can be
difficult but it may be just what
they need.
• Make sure you take time to
engage the young person on their
level.
• Safeguarding issues
• You need to test the intervention
and listen to the feedback from
young people
What Our Pilots Told Us
•
•
•
•
•
•
•
•
Pilot studies funded by the
Regional Hidden Harm Quality
Assurance Group (PHA/HSCB)
and Alcohol Research UK
2 pilot projects (2011-2013)
Added Parental mental health
57 practitioners trained:
20 used StC (1:1 & groups).
43 YP. Many living with
problems for 10+ years.
Encouraging findings
Benefits also for practitioners ;
Those who did the work valued
the structure of the
intervention.
It did have its challenges:
• Large degree of attrition
• Practitioners who wanted to be
supportive of young people but
did not have capacity to deliver
even a brief intervention like
Steps to Cope
• Keeping practitioners to fidelity of
the intervention
• Workers seeing the value in
quantitative tools
Some of the things young people told us about how
their parents drinking affects them
Worries
'I worry all the time about Mum
& family‘
'Scared mum will die‘
'Worried about everything‘
'That I am so alone'
Health
'Always wake up during the night, feel
drained‘
'No food in the house and I got really
hungry‘
'Sometimes won’t get up, drink a lot,
hide away‘
'Lots of bad memories’
Feelings
Sad, depressed, angry, helpless, despairing, anxious, nervous, always
watching & waiting for something to happen, (always) worried, scared,
embarrassed, lonely/alone, can’t win, annoyed, cry a lot, confused,
distressed/lost, numb
'I don’t know how I’m feeling, sometimes
I think I want to help her, other times
she makes me so angry.‘
How STC Helps Young People
• Think and talk about their experiences and understand their feelings
– many had not done this before, or had ever been asked.
• Feeling less alone and understanding that these are common
problems which affect a large number of children and young people.
• Learning and understanding about addiction
• Increased recognition that the problems are not the young person’s
fault.
• Thinking about coping, and making changes to coping which the
young person feels are more helpful.
• Thinking about support networks and who the young person can
turn to for help.
“I think he feels a bit better from having been
able to talk about it.....and be believed”
The Challenge: What We are Working
on to Take it Forward
To get started:
Now that we are started:
•
•
•
•
 How the project is managed
 Support pathways
 Design and web based plat
form
 Young people’s involvement
 Training and validation
process
 Training for trainers process
 Regional practitioner
network
 Evaluation
 Sustainability
Funding
Clear outcomes
Policy context
Regional buy in
Project Funding and Outcomes
.
• Young people will be more resilient
and be better protected from harm
from parental alcohol misuse
• Young people will be more able to
deal with the impact parental
alcohol misuse has on their lives
• Relevant organisations' and
practitioners will be more
competent and effective in
addressing needs of young people
living with parental alcohol misuse
The Steps to Cope Project Targets
• Raise awareness of as many young people as possible about parental
alcohol misuse and getting support (mainly through schools and social
media)
• Provide a web platform for young people to get information and support.
4000 young people will access self-administered intervention, electronic
or face to face support
• Provide direct support to 1992 young people via face to face intervention
using a network of steps to cope practitioners
• Train 30 trainers who will then train 519 practitioners across organisations
in NI to support young people living with Parental Alcohol Misuse
• Involve young people in the planning, development and delivery of the
project
Policy Context
NI Hidden Harm Action Plan advocated:
•
•
•
•
•
•
Raise awareness of hidden harm
Identify young people living with hidden harm
Create spaces for young people to talk
Provide a range of supports
Greater interagency co-ordination
Develop the skills of the workforce
Did we get buy-in for the project?
• Public Health Policy Branch
DHSSPS
• Public Health Agency
• Addiction Services in 5 Trusts
• Children’s Services in 5 Trusts
• YJA, PBNI, ELB’s, Schools and
Colleges
• All Drug and Alcohol Youth
Treatment providers
• Existing hidden harm services
• It is more to say yes that is a
good idea.
• It is making a commitment
and investment from your
organisation.
How are we going to manage the
project?
ASCERT
Project Management
Group
ASCERT, Barnardos, SEHSCT, ADF
Young People’s
Regional Reference
Group
STC Project
Worker
STC Service Manager
STC Project
Worker
STC Project
Worker
Project
Administrator
Steps to Cope Support Pathway
Young Person
Signposting
Steps to Cope
Web Platform
Direct support
Steps to Cope
Project Team
Referral
Network of organisations
with Steps to Cope
Practitioners
STC Web Platform
• Young people can get
information about PAM and how
it may be affecting them or their
family
• Signposting to services that can
support them including those
that can provide the STC
intervention
• Young people can be guided
through the steps to cope
intervention on the website
• Direct contact with STC staff by
phone, email or instant message
Regional STC Practitioner Network
• Develop a network of trainers to cascade training to a network of
practitioners in organisations across NI
• Provide practice support to practitioners and share practice
• Practitioners provide direct support to young people that access their
organisations or are referred by STC team
• Champions identified to roll out and embed STC beyond life of project
Train
Practitioners
• 30 trainers
Train Trainers
• 519
practitioners
• 12 +
champions
Develop
Champions
70 organisations across NI already interested in having
129 practitioners trained in year 1
Involving Young People in
Young People’s Regional Reference
Group
 Inform the design of website and
resources
 Input to project management
Participation Groups in each Trust area
 Share experiences and advocate
the project to other young people
 Ensure project is relevant to young
people
Reaching Young People
Schools
Social Media
Peer networks
3rd Party websites
Young
People
Literature
Website links
Meetings/presentations
STC
Local
Impact
of
alcohol
Awareness Sessions
Literature
3rd Party Education Programmes
Youth
and
Family
Services
Literature
Website links
Meetings/presentations
Sustainability
• A network of skilled practitioners across NI to support young
people
• Organisations across NI skilled to work with hidden harm as
core work
• A network of trainers to carry on future training
• Champions across sectors to take the work forward and
embed it
• A web platform that could be transferred to other providers
or sustained with some resource.
• Strengthened evidence base
Most Important Safe Practice
• Safeguarding issues are at the forefront of
practice
• The general website will be open to all and
contain information
• The intervention area and discussion areas
will be moderated
Evaluation
• We will be using two quantitative tools to measure
impact
• Resilience Scale for Adolescents; READ
- (1) personal competence, 2) social competence, 3)
structured style, 4) family cohesion, 5) social
resources.
- A designed questionnaire based on the 5 steps
- The Advisory Group is considering what useful
information a small external evaluation could tell us
Strengthening the Evidence Base
We will be doing some additional work in other areas to
build upon the evidence through evaluation
We are only getting started
What else can further evaluation tell us?
Fearfulness/Self Protection
Confrontation/Self Destruction
Fearful Inaction
Emotional Attack
Terrified
Tried to show him up make jealous
Protective Action
Hide money, took special care of own possessions
Discord
Rows arguments
Fear of the Future
Afraid for the family
Action against self
Gets drunk, makes self sick, hurts self
Unemotional' or Indifferent to Pain
Stoicism, put on a brave face, pretend all is well
Involvement
Detachment/Internalising/
Help Seeking
Anti Drink
Avoidance
Pours down sink
Refused to talk, stayed in the bedroom
Indulgence
Switched off
Gave him drink, make comfortable
Built shell around self, day dreamed
Self Blame
Help seeking
Felt guilty, blames self
Sought help from neighbour relative
Thinking About
Coping
Next Steps
Learning from your experience
of accreditation
Getting our trainers
accredited
Insuring we get young
people’s views in the content
and design of the workbook
and website
Launching the web site
Training managers
________ ___ ___ ____
Networking providers
________ __________
_________
Thanks for having me
Any Questions?
[email protected]

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